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Traveling With Rheumatoid Arthritis

graphic image of hands off the baggage

Rheumatoid Arthritis flares in shoulders causes no lifting of baggage at the airport.

I have always traveled with Rheumatoid Arthritis in a remission state, sometimes better than others. In about a week I will be off to Indiana to watch my daughter graduate. My flight is booked and I have never been through the airport without carrying my own bags. This will be a first for me, so I called the airline to see what I needed to do to get my bags to the gate with me.

The customer service agent tells me to check one bag and I would not need to lift my laptop backpack, I could just slide it under the seat. I told her she did not understand, both bags are usually carry on and I could not lift either bag at all, not even to load into the plane. She asked if I needed a wheelchair, I told her know I can currently walk but I cannot lift the bags at all. She told me to just ask someone outside for help and they will put my bags on a cart and take them to the gate for me. I hope it is that easy.

Still wondering what are the odds of me ending up lifting one of the bags throughout my day of travel. I really cannot imagine making it through the entire travel day without lifting a bag. Maybe the new medication with start working as soon as I get the first shot of Cimzia? That would be nice. Well off to the doctors to get that new prescription and have a second Vectra DA blood test.


Bad Week, Hard Lessons

This week I am still recovering from a pretty bad flare, one I feel was my own fault, but really Rheumatoid Autoimmune Disease (Rheumatoid Arthritis) is at fault. I did not do it on purpose, just a temporary forgetfulness of what I can handle, it happens too often. My boyfriend’s son came over to help setup my bed and move around boxes. He also helped out with putting the top of my new desk on and tightening the screws.

The desk was my first error, but I really did not know it would be at the time. Lloyd pulled the box over to the area where I needed to setup my desk. I was excited to get to put something together; strange but I like it. It all went well and I had no pain until I started to have to look up and raise my hands just above my head to screw in a few of the screws.  My shoulders started felling a little sore but not bad enough to stop.  After the desk was ready, Lloyd headed out the door with his son. I headed into the bedroom to look for things I needed to get my desk organized a little. The boxes were stacked up on top of the dresser and I grabbed a couple down to look in them, yes my second mistake. They were pretty heavy but I felt no pain, at the time.

Then next day Lloyd headed to Las Vegas for a conference. I am not sure when but at some point I noticed I was starting to have to urinate every 10 minutes, this seems to happen before severe amounts of pain and has became a sign. I decided to get the meats I purchased grilled so I just grilled everything up for the week. I was afraid if I did not grill it all, I would not feel well enough to do it later, which I was right. My shoulders started getting tender and my neck and back started getting stiffer. Continue reading

Rheumatoid Arthritis Flare

Sorry I have not been posting but I have been dealing with a flare. I usually deal with more pain and stiffness in the winter months. Right now I am in California and the pain and stiffness has went down. The stiffness has been in my shoulders. My back was swollen when I got here. The swelling was visible in the muscles in my back. I would say I was at a 7 or 8 on the pain scale when I left Indiana, it dropped to a 4 after about 24 hours here and now I’m down to a 1 or 2.

Heading back to Indiana on Monday, will see how long it lasts.

Rheumatoid Arthritis Health Log

RA health log. Today I am changing the health log a little. I will update it daily if I can or write about several days if I miss a day or two. Today I am catching up on the last week. Saturday I had stiffness in my hands when I was holding the camera. Monday night I began to get stiffness in my neck and shoulders. Yesterday it finally started raining and the pain and stiffness have went down in the pain levels. Just annoying right now.

I finally setup an appointment for a neck, back and shoulder massage, it is for Saturday and I am looking forward to it. Flexeril is definitely keeping the pain down, I did forget to take it one night and I was in pain while sitting the next day.

I only did exercise 2 days this past week, getting ready to hit the Wii now and I will try to do that daily if I can.

Rheumatoid Arthritis Health Log Day 72

Day 72 of my RA health log. Again slightly tender shoulders in the morning which went away when I got moving. My back is still stiff. Today I seen the doctor and I have flexeril to take tonight. I will see if this helps the muscle/back stiffness and help me sleep right. No other pain or stiffness.

No exercise today.

I had a Starbucks venti mocha on the way to the doctors office. Tonight I had a slice of pizza.

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Faces of Juicing Book

Biotinidase Deficiency Not RA

Diagnosed with Rheumatoid Arthritis in Dec 2003 because of joint pain and fatigue. Found out on July 19, 2013 that I really was profoundly low on Vitamin B7 because of a rare disease called Biotinidase Deficiency. When I found out I was very weak, hardly could get out of bed, could not turn my head without getting light headed, dragging my feet when I tried to walk, struggled to breath daily for years and was having many many other issues. From the first 24 hours of taking Biotin my symptoms started to disappear and my body started getting stronger again.

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