remission

Make A Wish or Bucket List? My Remission List

This week I am another year older but I feel so much younger than the last couple years. I am not sure how long this will last but I think I will start making a “Bucket List” or “Wish List”; really it is my “Remission List”. What do I want to do while feeling good or before the next flare? I have a few ideas already, so here we go.

My Remission List

  • Visit family and friends in Indiana and friends in Texas.
  • Travel – I am thinking I need to drag Lloyd across the US a few more times and maybe some International travel.
  • Some off road 4-wheeling like we did in Hawaii, a few more helicopter rides would be good too.
  • Rent a Harley Trike for a day maybe in South Dakota or Utah, maybe do a cross country trip.
  • Morel mushroom hunting in the Sierra Nevada, but it is sold out; maybe we can take pictures.
  • Awareness or community walks, while I can walk I want to walk.
  • Some live music therapy, starting this Sunday, we are going to see Carl Palmer of Emerson, Lake and Palmer at Saint Rocke in Hermosa Beach.
  • Take photos of flower fields.
  • Trip to Sturgis.
Well that is all the fun and crazy things I can think of doing at this moment, I am sure I will come up with more to add to this list. What do you do? What would you have on your list? Instead of music, here are some photos from my first remission period.

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Crazy But Good, One Month Pain Free

One Month Pain Free

photo taken of a rose at the flower park.

Photo of a rose taken at the flower park.

It has been an amazing month of standing as long as I like, forgetting I have my shoes on, walking up and down hills at the flower park, forgetting I have my purse on my shoulder and holding my camera with the heavy lens and flash unit on it without any pain. I have not felt this pain and fatigue free since 2009 and I have missed it! Mobic has been providing the extra relief in the last month. I am unsure if this drug can be taken long term. I stop taking it in another 6 weeks, so I am going to enjoy the pain free times while I have it.

In 6 weeks we will see if the 10 mg of Arava in combination with the Cimzia keeps me pain free. Also it will be warmer then and I could be pain free because of weather. Can Mobic be taken in the winter months only? For me this is the start of remission and hopefully with a few tweaks of drugs I will stay this way for awhile.

Is the Rheumatoid Arthritis causing issues with my thyroid?

Seems like that is what my Rheumatoid Arthritis may be doing to my thyroid. Two out of three tests in the last year have come back hypothyroidism. I have also had symptoms of hyperthyroidism and some of the symptoms can be from the Rheumatoid Disease and the drugs, this makes it a little more confusing.  According to PubMed Health hypothyroidism can be caused by “An attack of the thyroid gland by the immune system“, which is what the Endocrinology doctor believes is happening. We could start treating now or see if I can lose weight now that the Rheumatoid Disease (previously known as Rheumatoid Arthritis) seems to be coming under control and test again to see if I am in normal ranges again. So 10 days ago I started to watch what I am eating and going for longer walks to see if I can lose some weight. I have lost 5 lbs so far. Continue reading

Faces of Juicing Book

Biotinidase Deficiency Not RA

Diagnosed with Rheumatoid Arthritis in Dec 2003 because of joint pain and fatigue. Found out on July 19, 2013 that I really was profoundly low on Vitamin B7 because of a rare disease called Biotinidase Deficiency. When I found out I was very weak, hardly could get out of bed, could not turn my head without getting light headed, dragging my feet when I tried to walk, struggled to breath daily for years and was having many many other issues. From the first 24 hours of taking Biotin my symptoms started to disappear and my body started getting stronger again.

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