Posts Tagged ‘RAD’

Walking with Rheumatoid Autoimmune Disease

February 20th, 2012

I have been walking usually twice a day for a few weeks now, which has been a nice change after being pretty much stuck in the house in too much pain.  I have notice a change in my pattern of stiffness. Before I started walking, most of the pain was in my shoulders, back and elbows. Since I have been walking more now I deal with stiffness greater in my feet, hips and knees. The last few weeks still have been an improvement in my Rheumatoid Autoimmune Disease (RAD formally RA aka Rheumatoid Arthritis). It seems to help not picking up heavy items or hold anything too long. We went to a Valentine Soiree held by the Lady of Magic at the Redondo Beach Castle. I took my Canon Rebel and purse with Motorola Xoom, the weight and/or actions did increase bruised feeling in my inner shoulders and spine for a few days. Not enough of a bruised feeling to make me not want to pick up the camera again, I will again.

Sometime the pain is worth the actions.  The enjoyment of doing something at times is worth the amount of the pain that increase from doing it, whether it is holding a camera to take photos or walking the dogs. Right now I will continue walking because I can and the stiffness is on the lighter side. How long will it last? I hope it is something I can keep up but I know if the pain, stiffness or fatigue increase, I will have to skip out on the walks. I am grateful to be able to do them now and not be where I was last year, just hoping to have the energy and pain levels go down enough to make it to the store and back.

Do you walk when your pain and stiffness from your RAD is on the lighter side? How often and how far do you go? Right now I am doing a morning and evening walk around a mile or so each walk.

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Please help support Rheumatoid Patient Foundation by making a donation today and learn more about Rheumatoid Autoimmune Disease (also called Rheumatoid Arthritis or RA).

RAD Pain Scale – Take One

January 9th, 2012

Today I finished a Pain Scale, a request from RA Warrior “What would be your model pain scale? “. It is an attempt to customize a pain scale for Rheumatoid Arthritis. I had to think about different types of pain. What are the types of pain? What can cause a person physical pain? Some of my thoughts were about bee stings, sunburns, sprained bones, strained muscles, broken bones, torn muscles, headaches, migraines, cuts, surgery, childbirth, being ran over by a truck and even torture. What type of pain would a bee sting cause? I would think it would be acute pain, it can be intense but is usually short lived. Does that even matter?

Most people with RAD (Rheumatoid Autoimmune Disease aka Rheumatoid Arthritis) live with chronic pain daily.  I have read that pain receptors are sensitive to temperature (hot or cold), vibration as well inflamation. Inflammation happens when you are cut, you sprain something or when you are hit by a truck (tissue damage, broken bones, etc). When that happens if you move the damaged area the pain usually gets worse or sharper. With RAD you never see the truck coming, but it hits you. If you were to get hit by a truck and survive, you would probably have months of pain, recovery and rehabilitation. With Rheumatoid Arthritis this becomes our lifestyle.

I attempted to create a chart that describes some of the types of pain that someone with Rheumatoid Arthritis would recognize easily. But since I am just one patient, it would need more input on how they might describe the pain. I also made section for recommendations which I think individual patients would have to fill in. I put an example of something they may write to allow family members to see what help they may need during those levels of pain. They may not be able to communicate or think clearly enough ask.

Then a ‘May Compare To’ section to come up with a way to describe to others (family, friends, medical communities) and for Awareness of Rheumatoid Autoimmune Disease. Again just a section that should have more input from many RAD Patients.

 

Rheumatoid Arthritis Pain Scale

My first try at a pain scale for Rheumatoid Arthritis.

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Please help support Rheumatoid Patient Foundation by making a donation today. Pain is just one symptom of RAD learn more about Rheumatoid Autoimmune Disease (also called Rheumatoid Arthritis or RA).

—Update 1/9/2012 @ 12:49 PM—–

This article was a part of Pain Scale Blog Carnival at RAWarrior.com which has 14 other Patient opinions on pain scales.