pain free

Finding Peace While Making Faces

Faces of Juicing Recipe Book Sign

Faces of Juicing Recipe Book coming soon!

Another month just went by pain and symptom free. I have been working hard on a recipe book called Faces of Juicing. I did not realize I have not posted anything on this blog in the last month. Time seems to go by fast when pain free, it is a nice change. I like having a hard time not wanting to stop walking or carrying my stuff. I love getting to pick up my dog Hershey, petting the dogs, holding my camera and anything else I want to do. I can even stand around and sit on any seats now, so yes I love it. I even wore blue jeans this past week, I haven’t done that in almost two years!

RA Warrior is doing another blog carnival and has asked patients to blog or comment on what do you do to keep the disease in taking over parts of your life? Which brings me to Faces of Juicing; during my three years of flaring I started juicing. In the fall of last year I started playing with my food and making faces out of the produce before I juiced them. Before I started flaring I took a camera out all the time to take photos of flowers, butterflies, events and anything else I found interesting. I really missed being able to do something artistic like that, so I decided to start doing something with the produce to make juice.

As I started it was hard staying on my feet that long, they would be on fire before I was done. My shoulder was also on fire many times after lifting and pushing the plunger down on the juicer, one time it swelled up pretty good a few hours after making the juice. But I was really enjoying making the faces and juicing each day. As drugs changed for my Rheumatoid Arthritis I had improvement and now I have no pain at all while juicing or any other time during the day or night. Making the faces gave me some peace from the disease even when I had increased pain from doing it.

I am not sure how to explain that feeling of peace. It was like when I held my Canon Rebel up to my face and looking through the view finder, the few seconds it would take for me to frame the photo and focus on the scene I would have complete peace and the pain would not matter. I found that same peace while playing with my food and making a face each day.

During the start of my third week of being pain free, I got a tweet from another patient in the #rheum community on Twitter. @anetto said on February 24th “@geekgoodgirl @gotbaddog You need to do a Faces of Juicing book. I bet you have enough pictures #rheum”.  I saw that and thought in my head, “OMG, I can do this! OMG, I never thought I would do this.” I have done short technical eBooks on how to do things, usually only a few pages long. Write a book, a recipe book, me? Well you know the craziness of Rheumatoid Arthritis, we do some crazy stuff. So yes, yes I will do this book! A week later I had all the photos downloaded to my computer and began working on the book. A month later I had a 90 page recipe book with over 50 juicing recipes. That is crazy right? To me it was, especially since in the last three years I struggled to write posts in blogs; it is hard to think when you have so much pain and fatigue. For that reason I decided the timing was right so I better get to writing. Currently I am finishing the website and then will release the book for Amazon Kindle and paperback.

But that is not all, what started out as something fun and peaceful to do has now turned into multiple books. I am working on the second book, juicing for weight loss now. Also another person in the juicing community I put my juicing photos up on has been making characters before blending. So I will be working with him on a recipe book for blending. How exciting is that? Continue reading

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Crazy But Good, One Month Pain Free

One Month Pain Free

photo taken of a rose at the flower park.

Photo of a rose taken at the flower park.

It has been an amazing month of standing as long as I like, forgetting I have my shoes on, walking up and down hills at the flower park, forgetting I have my purse on my shoulder and holding my camera with the heavy lens and flash unit on it without any pain. I have not felt this pain and fatigue free since 2009 and I have missed it! Mobic has been providing the extra relief in the last month. I am unsure if this drug can be taken long term. I stop taking it in another 6 weeks, so I am going to enjoy the pain free times while I have it.

In 6 weeks we will see if the 10 mg of Arava in combination with the Cimzia keeps me pain free. Also it will be warmer then and I could be pain free because of weather. Can Mobic be taken in the winter months only? For me this is the start of remission and hopefully with a few tweaks of drugs I will stay this way for awhile.

Is the Rheumatoid Arthritis causing issues with my thyroid?

Seems like that is what my Rheumatoid Arthritis may be doing to my thyroid. Two out of three tests in the last year have come back hypothyroidism. I have also had symptoms of hyperthyroidism and some of the symptoms can be from the Rheumatoid Disease and the drugs, this makes it a little more confusing.  According to PubMed Health hypothyroidism can be caused by “An attack of the thyroid gland by the immune system“, which is what the Endocrinology doctor believes is happening. We could start treating now or see if I can lose weight now that the Rheumatoid Disease (previously known as Rheumatoid Arthritis) seems to be coming under control and test again to see if I am in normal ranges again. So 10 days ago I started to watch what I am eating and going for longer walks to see if I can lose some weight. I have lost 5 lbs so far. Continue reading

Faces of Juicing Book

Biotinidase Deficiency Not RA

Diagnosed with Rheumatoid Arthritis in Dec 2003 because of joint pain and fatigue. Found out on July 19, 2013 that I really was profoundly low on Vitamin B7 because of a rare disease called Biotinidase Deficiency. When I found out I was very weak, hardly could get out of bed, could not turn my head without getting light headed, dragging my feet when I tried to walk, struggled to breath daily for years and was having many many other issues. From the first 24 hours of taking Biotin my symptoms started to disappear and my body started getting stronger again.

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