It has been an amazing month of standing as long as I like, forgetting I have my shoes on, walking up and down hills at the flower park, forgetting I have my purse on my shoulder and holding my camera with the heavy lens and flash unit on it without any pain. I have not felt this pain and fatigue free since 2009 and I have missed it! Mobic has been providing the extra relief in the last month. I am unsure if this drug can be taken long term. I stop taking it in another 6 weeks, so I am going to enjoy the pain free times while I have it.
In 6 weeks we will see if the 10 mg of Arava in combination with the Cimzia keeps me pain free. Also it will be warmer then and I could be pain free because of weather. Can Mobic be taken in the winter months only? For me this is the start of remission and hopefully with a few tweaks of drugs I will stay this way for awhile.
Seems like that is what my Rheumatoid Arthritis may be doing to my thyroid. Two out of three tests in the last year have come back hypothyroidism. I have also had symptoms of hyperthyroidism and some of the symptoms can be from the Rheumatoid Disease and the drugs, this makes it a little more confusing. According to PubMed Health hypothyroidism can be caused by “An attack of the thyroid gland by the immune system“, which is what the Endocrinology doctor believes is happening. We could start treating now or see if I can lose weight now that the Rheumatoid Disease (previously known as Rheumatoid Arthritis) seems to be coming under control and test again to see if I am in normal ranges again. So 10 days ago I started to watch what I am eating and going for longer walks to see if I can lose some weight. I have lost 5 lbs so far. Continue reading
In November I signed up at the local gym so I could start working out again on the elliptical, it has been awhile and something I have really missed. November 15th was my first day back on an elliptical. I felt like it may cause issues with my shoulders or neck later on since my shoulders and neck has been where the strongest pain and stiffness are and the damage in my neck. I was surprised to find that my right hip was giving me the greatest pain but I was able to keep going. I did feel some pain all evening and thought I might have over done it. The second day the hip pain was gone but returned during the first 10 minutes of my workout then it went away after it warmed up and did not come back after the workout. It seems the days I am working out consecutive I do have less pain and stiffness and the days I skip I have a greater chance of feeling some stiffness. Usually more on my right side, shoulder, hip, knee, ankle and foot lately.
I have also learned not to place my hands on the heart monitor grips right in front of me; it caused a strong fluttering in my back of my neck. But I can use the handles that move to workout my shoulders or put them on the outside curves of the monitor grips. During my first remission I would go to the gym with my sister. She could go forward and backwards on the elliptical and I found I could only go forward, going backwards made my knees hurt so I just kept going forward. Rheumatoid Arthritis can make it hard, you never know when something is going to cause you pain later and sometimes all you can do is keep trying. Sometimes it is hard to know when to give it up; it is something I have issues with. I found this great motivational video being posted on Facebook the last few weeks, “They Were Wrong” and it is how I feel, when I am bitching and screaming on this blog that is because I have a hard time accepting that living with this disease is okay, it is not. I accept that I have it, I have had it for a long time, I just do not accept that it is okay and I am thankful for everyone who donates, promotes and works for Rheum4us.org to keep patients attending conferences, getting information about the disease to the media as well as supporting patients.
So I have tried to track working out by posting on Facebook how much time and miles I do on the days I go workout. I do not know that I remember every time but I try to track it that way. It has been 25 days since I joined the gym and I have went to the gym 14 days so far. I started out doing 2 miles in 30 minutes and I am up to doing 4 miles in 60 minutes. I have gone 39 miles and spent 10 hours and 30 minutes on the elliptical. I am hoping to strengthen muscles and lose some weight. I feel like my spine, shoulders and upper back are getting stronger, not perfect but I like the direction I am going. Continue reading