elliptical

Working Out, Going Uphill, Breathing and Health Activist Nomination

Working Out Again

In November I signed up at the local gym so I could start working out again on the elliptical, it has been awhile and something I have really missed. November 15th was my first day back on an elliptical.  I felt like it may cause issues with my shoulders or neck later on since my shoulders and neck has been where the strongest pain and stiffness are and the damage in my neck. I was surprised to find that my right hip was giving me the greatest pain but I was able to keep going. I did feel some pain all evening and thought I might have over done it. The second day the hip pain was gone but returned during the first 10 minutes of my workout then it went away after it warmed up and did not come back after the workout. It seems the days I am working out consecutive I do have less pain and stiffness and the days I skip I have a greater chance of feeling some stiffness. Usually more on my right side, shoulder, hip, knee, ankle and foot lately.

I have also learned not to place my hands on the heart monitor grips right in front of me; it caused a strong fluttering in my back of my neck. But I can use the handles that move to workout my shoulders or put them on the outside curves of the monitor grips.  During my first remission I would go to the gym with my sister. She could go forward and backwards on the elliptical and I found I could only go forward, going backwards made my knees hurt so I just kept going forward. Rheumatoid Arthritis can make it hard, you never know when something is going to cause you pain later and sometimes all you can do is keep trying. Sometimes it is hard to know when to give it up; it is something I have issues with. I found this great motivational video being posted on Facebook the last few weeks, “They Were Wrong” and it is how I feel, when I am bitching and screaming on this blog that is because I have a hard time accepting that living with this disease is okay, it is not. I accept that I have it, I have had it for a long time, I just do not accept that it is okay and I am thankful for everyone who donates, promotes and works for Rheum4us.org to keep patients attending conferences, getting information about the disease to the media as well as supporting patients.

So I have tried to track working out by posting on Facebook how much time and miles I do on the days I go workout. I do not know that I remember every time but I try to track it that way. It has been 25 days since I joined the gym and I have went to the gym 14 days so far. I started out doing 2 miles in 30 minutes and I am up to doing 4 miles in 60 minutes. I have gone 39 miles and spent 10 hours and 30 minutes on the elliptical. I am hoping to strengthen muscles and lose some weight. I feel like my spine, shoulders and upper back are getting stronger, not perfect but I like the direction I am going. Continue reading

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Thankful For Less Pain & More Strength

I have been enjoying less pain and stiffness and more strength since I started on Cimzia at the end of May for Rheumatoid Arthritis. I still have stiffness and pain daily but it is mostly at night and very low levels. I started to think about the improvements I have had since the change of treatments. Sometime in September I stopped having to take muscle relaxers, which has been nice. I also can stand on my feet a little longer, definitely have my energy back most days, and I can carry my own purse.  I have been able to bowl on Xbox and do Wii fit again. I even started doing 30 to 40 minutes daily on an elliptical this past week. Oh and I can pluck my own eyebrows again, still not very good at it but I can do it!

I am very thankful for the chance to exercise again. It is very hard to deal with a disease that limits your ability to move and even lifting your own arm over your head. I am looking forward to greater improvement as I exercise and work off the weight gain over the last 2 years of flaring. I did see more improvement when I was able to exercise and work off the weight the first time I went into “remission” while on Enbrel in 2007.

Anyway I decided to make a timeline chart of the start of “remission” on Cimzia, see below.

Timeline of RA Patient for 1st six months on Cimzia

Rheumatoid Arthritis Patient timeline on Cimzia

 

I hope you have a Happy Thanksgiving! What are you thankful for? Here is a little more music therapy, which reminds me I am thankful for being able to bop my head and move my shoulders to the music again.

 

Faces of Juicing Book

Biotinidase Deficiency Not RA

Diagnosed with Rheumatoid Arthritis in Dec 2003 because of joint pain and fatigue. Found out on July 19, 2013 that I really was profoundly low on Vitamin B7 because of a rare disease called Biotinidase Deficiency. When I found out I was very weak, hardly could get out of bed, could not turn my head without getting light headed, dragging my feet when I tried to walk, struggled to breath daily for years and was having many many other issues. From the first 24 hours of taking Biotin my symptoms started to disappear and my body started getting stronger again.

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