caregivers

Where’s the socks? Is Cimzia working?

graphic about socks and cimzia for RA

Lost my socks but found energy and pain free week.

Where’s my socks?

A strange title but I have really missing my socks, around a dozen pairs disappeared.  The last two weeks when I did laundry I only had a few pair of socks and I knew I had just bought some so I should have more than 3-4 pair. When I go to bed they are on my feet, when I get up they are gone. This week I was looking for my sweater and found a big ball of socks in the chair next to where I was sleeping. I have been pulling them off in the middle of the night and forgot about them in the morning. Finally I have socks again!  I had to giggle when I found them, I forget things but this time I forgot my socks.

Is Cimzia working?

I finished the loading doses and this month was my first full month between shots. Last week I felt great all week, the change of taking 2 muscle relaxers (Flexeril) made a difference. Last Thursday night we were out for Business n Beer and Lloyd’s birthday. I sat on a bar stool for about 5 hours, I could feel soreness across my back by the end of the night. It was tighter the next morning and I felt it throughout the week. I will try harder to remember to sit with my back to the wall for some support the next time! Some lessons are forgotten, I usually make sure I’m sitting in a chair with a back to it, especially if it is going to be for a couple hours.

Before Thursday night the week was pretty good and I had some pain free days. Now I am looking forward to the next 2 shots of Cimzia on Saturday, I have felt some soreness in my jaws, hips, shoulders (when washing my hair or juicing), feet and fingers the last couple days as well as fatigue. The pain just feel like I am bruised and it comes and goes. I remember the same feeling as the Enbrel started working so that gives me some hope that I may find myself in remission again soon.

Even though the stiffness and pain has been better, I have still had to deal with feeling anxiety, feeling frustration and fevers. Next week I see a gland doctor (Endocrinologist), hopefully that will be the start to taking care of the Thyroid issues.

Rheumatoid Arthritis Support

If you are a patient with Rheumatoid Arthritis (aka Rheumatoid Autoimmune Disease) or a lovegiver (aka caregiver) please take some time to visit Rheumatoid Patient Foundation the first organization for RA patients by RA patients. If you are an RA patient, please take the time to answer our survey. You can also sign up as a member and have access to the private patient forum for $25 a year. Running short on cash; then here is your chance to become a member for free. How? Just leave a comment on this post by July 31, 2012 and on August 1st I will put the names in a hat and draw one person and give them a membership. In the comment please answer this question; what other diseases have you been diagnosed with besides Rheumatoid Arthritis?

Also you can join us on Sundays via TweetChat – #rheum at 12:00 P.M. PST. We feel your pain and frustrations, please join us even if it is just to vent, we understand.

Rheumatoid Arthritis Patients & Lovegivers

Stop and read graphic image for Rheumatoid Patient Foundation

Learn about how you can help Rheumatoid Patient Foundation.

Calling all Rheumatoid Arthritis patients and their lovegivers, friends and family. Would  you be willing to help bring awareness about Rheumatoid Arthritis and the Rheumatoid Patient Foundation? We (patients, family, and caregivers aka lovegivers) can make a difference. I believe patients, family and caregivers are key to improving living with RA and finding a cure for this autoimmune disease (watch Lorenzo’s Oil  and Burzynski both available on instant play through Netflix).

How can you help? There are many ways you can help bring awareness to Rheumatoid Patient Foundation.

Here are a few ideas on how you can help:

  • Add a link to http://rheum4us.org/ on your blog or website.
  • Mention Rheum4us.org on Facebook, Twitter, Google+ and other social websites.
  • If you are a blogger make a posted about Rheum4us.org.
  • Add a blurb to your print media about Rheum4us.org
  • Send an email to your friends and family introducing them to Rheumatoid Patient Foundation at rheum4us.org
  • Mention Rheum4us.org in your next press release.
  • Talk about Rheum4us.org at local events, church or the next family picnic.
  • Like Rheumatoid Patient Foundation on Facebook.
  • Follow RPF on Twitter.
  • Subscribe to the RPF Blog.
If you are a patient or caregiver that blogs about living with Rheumatoid Arthritis, please let me know! I would like to add a link in my Patient Blog list. Would you like to add a button in your side bar for RPF? Let me know what size of button you need and I will try to make one up for you or grab the RPF image in my sidebar —>.
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My Rheumatoid Arthritis Stats

Rheumatoid Arthritis since Dec 2003, currently on Cimzia monthly, Meloxicam, Arava, Ambien CR, Vitamin D3 daily and B12 shots weekly. Also take Zyrtec for allergies. First remission was with Enbrel and Arava from April 2007 through September 2010 with a few bumps in the road (remission does not mean free of all pain, stiffness and swelling, but to me more like a headache once in awhile and not on a daily or weekly basis). No Prednisone since July 25, 2007

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