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Death By BenGay

Did you even know that could happen? During my recent flare, my daughter happened to be helping me put some patches on my back and shoulders. She asked me “Are these like nicotine patches?” I said “Sort of why?” She mentioned seeing someone die by nicotine patches on 1000 Ways to Die. I laughed and told her I don’t think so. So the next day I did a search to find out and I found many articles about a Notre Dame Girl that died from using to much Bengay and Icy Hot

The medical examiner’s spokeswoman, Ellen Borakove, said the teen used “topical medication to excess.” She said it was the first time that her office had reported a death from using a sports cream.

I usually use Bengay during the day and SalonPas patches at night since they last longer, so I sleep longer. How much is too much? I have not had to use them at all in the last month, the Methotrexate has definitely helped with the pain and stiffness and I have energy now. But the last several days I have been dealing with stomach issues. Yesterday, on the way to the airport it I felt like I could “toss my cookies”. So I stopped at a gas station and picked up some Pepto-Bismol and I decided to grab some Tums too. Over the counter drugs could only help right? I really wanted to take some but I knew that there are MANY drug interactions with Methotrexate that could be an issue. I decided to wait until I made it to the airport so I could check online to see if there are any bad interactions. Continue reading

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Rheumatoid Arthritis Flare & New Year

It has been awhile since I updated so here we go. I switched from Arava to Methotrexate four weeks ago and I’m starting to feel much better now. I am not 100% but 80% is good! Looking forward to being able to carry my camera around and take some good photos :). Still taking Enbrel and B12 shots weekly. Currently enjoying not feeling like I was ran over by a truck.

The new year came and went by so fast! Since I was not feeling well, I did not get to do a post on my resolutions for this year. First, I decided I will go back to a notebook in my purse for my health log. Instead of trying to post what I’m dealing with or how I’m feeling in this blog daily, I will try to do a weekly post in my health log.

Secondly, I decided to start writing more about Rheumatoid Arthritis (RA). It was my intentions last year to have articles on this blog and not just a health log. Unfortunately, I was sick several months during last year, at both the beginning and the end of the year. Winters have always sucked for me. After I start feeling better, I end up spending most of my time catching up on everything that I need to do for my business, kids and home. I am still trying to catch up my photo blog, Geek Good Girl. Last year I started the Project 365 and because of not feeling well the last few months I have not finished the year. I have about 45 more photos to go, so I will be catching that up. I am hoping to start covering more marketing conferences on Geek Good Girl and of course post more photos. I am not going to continue Project 365, that way I will not have to worry about catching it up. Instead, I will post when I feel good or when I cover a conference. :)

Lastly, I hope to start or become involved in a non profit for Rheumatoid Arthritis. I have a few ideas and a friend with a PhD that can help with grant proposals; he does that for cancer research. I am also hoping some friends with RA and those without RA would be interesting in being involved with this non profit and ideas. So if you are reading this post, feel free to contact me. Social site links are in the sidebar —–>.

Since I have a thing for photos, I thought I would include a few in this post. My boyfriend has taken many photos of me in the last year. In previous years, I have not let him post photos of me when I was wiped out from the RA. Last year I got over it and let him post them as well. It is a part of my life. Funny, at the end of the year someone mentioned they can see in the photos when I am not feeling well. I always can see that in the photos, but my boyfriend does not really notice. Just like I don’t notice when he has gained weight. He always ask why I didn’t tell him he was that fat, I guess it just not what I’m looking at :).

This photo was while I was feeling good, on a flight to Ireland, with my boyfriend. I can say I had a blast in Ireland. I have not walked that much since before I had RA. I was shocked at how much walking I was able to do without pain. (Day 255 of Project 365).
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Rheumatoid Arthritis Flare

Sorry I have not been posting but I have been dealing with a flare. I usually deal with more pain and stiffness in the winter months. Right now I am in California and the pain and stiffness has went down. The stiffness has been in my shoulders. My back was swollen when I got here. The swelling was visible in the muscles in my back. I would say I was at a 7 or 8 on the pain scale when I left Indiana, it dropped to a 4 after about 24 hours here and now I’m down to a 1 or 2.

Heading back to Indiana on Monday, will see how long it lasts.

Rheumatoid Arthritis Health Log

It has been awhile since I did an update. I have been feeling good, not much pain or stiffness in joints but I have still been dealing with my back. I did finally get off the Flexeril in the last week. :)

I have added a this stuff called take charge that I can add to my yogurt and it gives it some crunchiness, it is a multi vitamin. I did notice there was not any Vitamin D in it so I picked up some Calcium Plus Magnesium and Vitamin D-3 from GNC. While I was there I grabbed MSM, Omega Complex and Glucosamine the non shellfish kind. A few days after starting them I noticed my back pain went down some but not all the way. I tried no Flexeril and the pain was down enough that I did not need the Flexeril, but I did need to do more stretching. I found doing enough stretches at night before going to sleep and I wake up without any pain. If I do not do enough then I wake up with stiffness so I do more stretches. It has worked so far!

Rheumatoid Arthritis Health Log

I am in Los Angeles visiting my boyfriend. We went to Sequoia National Park, Kings Canyon. and Yosemite National Park to take some pictures. So I did get more exercise this last week. We are back at his house and last night I went for a walk with him and Buddy.

My feet did swell up after a walk down and then back up a hill in Sequoia and the pain was around a 3. The next morning they were fine.  When we went to Yosemite they got a little swollen by the end of the day but just a 1 on the pain scale. I am still dealing with back pain if I do not take the three  Flexeril.

I have noticed more sweet cravings since I started on the Flexeril.

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Faces of Juicing Book

Biotinidase Deficiency Not RA

Diagnosed with Rheumatoid Arthritis in Dec 2003 because of joint pain and fatigue. Found out on July 19, 2013 that I really was profoundly low on Vitamin B7 because of a rare disease called Biotinidase Deficiency. When I found out I was very weak, hardly could get out of bed, could not turn my head without getting light headed, dragging my feet when I tried to walk, struggled to breath daily for years and was having many many other issues. From the first 24 hours of taking Biotin my symptoms started to disappear and my body started getting stronger again.

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