Rheumatoid Arthritis Articles
Rheumatoid Patient Foundation (RPF) announces the establishment of Rheumatoid Awareness Day to be held each year on February 2. The first one will be held in 2013 on the same day as Groundhog day. “Compare disease onset to the moment the groundhog comes out of his hole to look for his shadow,” says Kelly Young, founder of the RPF. “It’s impossible to predict how aggressive the disease will be or whether treatments will be effective. The six weeks that the groundhog forecasts correspond to the short window of opportunity for people with rheumatoid disease to get early diagnosis and treatment, which has been shown to be a crucial component of positive outcome.”
Rheumatoid Awareness Day will help give people with the chronic illness known as rheumatoid arthritis, or rheumatoid disease, a day of recognition. Because the disease is commonly presumed to be a type of arthritis, awareness is lacking, causing problems with disability accommodations, clinical care, healthcare reimbursement and research funding.
For information on how to support Rheumatoid Awareness Day, visit http://rheum4us.org/rheumatoid-arthritis-awareness-day/. You can also find more information in the announcement on RA Warrior here: http://rawarrior.com/1st-rheumatoid-disease-awareness-day-groundhog-day-2013/.
This week I am lucky enough to get to get up really early to be at the Cedars-Sinai Imaging Center by 9:30 A.M. Tuesday and Wednesday for a Nuclear Thyroid Uptake and Scan to see what the thyroid nodule is doing. Also I have an order for X-ray of Cervical Spine, to take a look at the Flexion/Extension and check for Atlantoaxial Subluxation. A previous scan shows mild bony degenerative and spondylotic changes throughout my cervical spine. Lloyd says I cannot complain because doing the test will help us see what needs to be done to improve my health.
After a little search with the thing they call Google, I ran into this article “Rheumatoid Arthritis of the Cervical Spine Overview of Rheumatoid Spondylitis” and reading how different types of compression in that area cause death for 25-30% of patients and in outcomes that “10% of patients with rheumatoid arthritis may die from brainstem compression that is unrecognized before their sudden death” I will go with Lloyd’s suggestion that I am lucky and that we may be able to prevent or take care of issues early. But whenever I quote percentages on information I find online, Lloyd see it a different way. He says that 70-75% of patients do not get different types of compression or 90% of patients with rheumatoid arthritis do not die from brain stem compression.
But I look at this a little different, first it is just one website with information that I have searched about. What is the age of the data they are referencing? Who collected that data? How was the data collected? Above I just quoted the website but I have not verified the data. Most patients or bloggers do not dig that far into statistics on the data they are referencing. The only thing in the above quotes that concerned me was the word unrecognized. As a patient with Rheumatoid Arthritis I see many things that go unrecognized. This quote had the following reference “Mikulowski P, Wollheim FA, Rotmil P. Sudden death in rheumatoid arthritis with atlanto-axial dislocation. Acta Med Scand. Dec 1975;198(6):445-51. [Medline]“. My first thought is do 10% of Rheumatoid Arthritis patients still die from “unrecognized” brain stem compression like they were in 1975? Have doctors found symptoms to look for to help prevent this from happening in the last 37 years? Has treatment of Rheumatoid Arthritis improved so much that this is no longer an issue? To me there is always more to be researched and patients are lucky to have that thing called “Google” to use.
During a weekly online Rheumatoid Arthritis patient (online support group) through TweetChat which is on Sundays via TweetChat – #rheum at 12:00 P.M. PST this week Anetto mentioned this article Dr. Google is currently only medical student Google. This article discusses the use of Google by patients, how sometimes doctors disregard something a patient finds online and how patients disregard the recommendations of going to the ER to take care of the stroke or appendicitis they are going through. Why does reading go to the ER not as effective as hearing a doctor say go to the ER? It also discusses how the data aka listings on Google which are getting more reliable. I can agree that as search engines have evolved one of their goals has been to provide the users better data, trusted data. This has been happening for many years. When search engines first started ranking websites it was pretty easy to get that number one spot, in fact it was pretty easy to get the top 100 spots if a person wanted to which made the listings in search engines less reliable. Continue reading
Calling all Rheumatoid Arthritis patients and their lovegivers, friends and family. Would you be willing to help bring awareness about Rheumatoid Arthritis and the Rheumatoid Patient Foundation? We (patients, family, and caregivers aka lovegivers) can make a difference. I believe patients, family and caregivers are key to improving living with RA and finding a cure for this autoimmune disease (watch Lorenzo’s Oil and Burzynski both available on instant play through Netflix).
How can you help? There are many ways you can help bring awareness to Rheumatoid Patient Foundation.
Here are a few ideas on how you can help:
So today started my further exploration of Rheumatoid Patient Foundation (RPF). While browsing the website I found the first RPF video released on Youtube. Please help spread awareness about Rheumatoid Arthritis. Share this video on Facebook, Twitter, Google+ and any other way you can. Thank you!
This is my first post to my new personal blog. I will be posting about Rheumatoid Arthritis, my health log, exercising, and quitting smoking.
Click here to find out more about Tanya Martin.
What is the disease Rheumatoid Arthritis? Check out Arthritis.org for more information on Rheumatoid Arthritis.